Tips on creating a cancer notebook to stay organized and gather information during cancer treatment and recovery.
After recovering from the shock of being hit by a cancer diagnosis, after the anger, fear and irrational thoughts have moved into the background (they don’t go away, but they become more manageable), filling time with research and information gathering is an excellent way to get a picture of what lies ahead. Many find that the best way to cope with the illness is to begin thinking about their care as if it were a full-time job.
Being a star at organization and planning is not natural for everyone, but with a few simple tools it is easy to map out a course of action to cope with cancer. A cancer notebook or cancer binder is a necessary cancer management tool. What is this, you ask? In short, it is a compilation of everything you feel you may need to take on the challenge before you.
Give it a Name
It may seem trite and silly at first, but a good place to start is to give the binder a name. No book is any good without a title. If you’re feeling sassy (yes, it’s ok to feel sassy, even with cancer) you could call it “The Boob Binder” or the “Big-Ass Breast Book” (in the case of breast cancer, for example). The more conservative type could opt for something more staid, like “Cancer Notebook” or “Cancer Resources”. Either way, a title is the first step in getting organized – it gives the book some import, and helps you find it on the shelf.
What’s In It?
There are no limits to what the binder could contain. It is up to each individual to decide what will be of use, and what will benefit her treatment and recovery. Some sections are absolutely necessary, and others are optional, limited only by the imagination!
Medical and treatment information is a must-have, and standard information in this section would include: diagnosis and patient-specific cancer details, surgery summaries, chemotherapy and radiation information (doses, frequency etc.), follow-up care results, and other medical appointment details. Also, business cards and/or contact information for everyone involved in treatment and care are absolutely necessary.
For those keen on complementary therapy, include information on massage, nutrition, and acupuncture. Wanting to connect with other cancer survivors? Set aside some space for a list of support groups, volunteer resources, and survivor networking opportunities – both online and real-world entries are fair game.
Beauty tips, exercise plans, book lists, insurance information, a glossary of health terms, information on clinical trials – the potential subject-matter is endless. Brainstorm for yourself and create a notebook that reflects your needs and your personality. Additions are encouraged and the content will evolve as time goes on.
Where to Start
Creating a Cancer Binder may seem like a daunting task, but don’t despair. Plenty of assistance is available, including downloadable templates and pre-made books to start you off on the right track! Check out the following websites for some of the best cancer planners and worksheets available:
The breastCANCER101 ten-year planner
Livestrong Survivorship Worksheets and Notebook
ASCO Cancer Treatment Summaries
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